Sorry I’m Late!

          I don’t know why this took me so long… Or why I really haven’t posted at all on a weekly basis since somewhere around March. But Camp Oasis really was a highlight of this past year as a Crohn’s patient! It was amazing to see how many people were living … More Sorry I’m Late!

Next Week

I decided to look at my journal from this year, and my most recent entry was this poem, which I thought I would share because 1) I haven’t posted in more than a month and 2) as I turned thirteen last week, I realized how much a person can change in one week, or even … More Next Week

The Perfect Plan

Lately, I’ve been spending a lot of time on this app called Paper. It’s an ironic name; there’s no paper involved, only a screen. But it’s a pretty realistic one that works just the way real paper does, just will an infinitely handy undo button. Anyway, I have found myself drawing on it a lot. … More The Perfect Plan

Six Months!

Woah. It feels like just yesterday, I was sobbing because I thought I would never be a normal kid again. I know everyone says that “it feels like just yesterday” thing about every big achievement and everything, but it really does. And maybe it’s because I really haven’t changed that drastically. I mean I’ve grown … More Six Months!

New IBD Shirts!

Yesterday, my best Crohnie friend (who happens to be my dance teacher), Marnina Cowan,   gave me two awesome new shirts; one for this summer, one that raises IBD awareness (though I can obviously wear them all the time!). They’re also really cute, and big enough for me to grow into them, so that’s a plus… … More New IBD Shirts!

Caramel Experiments?

So, a lot of the time I get really annoyed because of how often I’m craving sugar and then having nothing to replace it. Last night, I went to my friend’s house where we made a totally Johanna-friendly meal, with basil pesto salmon, lentils, artichokes in a delicious garlic butter sauce, and carrots baked with … More Caramel Experiments?