Today is September 1st, 2017. I never thought I’d make it this far. I never thought I’d last a whole year on the Specific Carbohydrate Diet. I never thought I’d want to. I never thought I’d need to. Not in the beginning, at least. But when I did, I got pretty close to perfect results: … More September to September — A Year on SCD
I don’t know why this took me so long… Or why I really haven’t posted at all on a weekly basis since somewhere around March. But Camp Oasis really was a highlight of this past year as a Crohn’s patient! It was amazing to see how many people were living … More Sorry I’m Late!
This is a guest post by a special supporter because Johanna is in West Virginia at Camp Oasis, a summer camp for kids with Crohn’s and colitis. At intake, Johanna got a huge high-five from the medical team when they realized her medication list was… empty. … More “Really? No Meds? – High Five, Girl!”
I decided to look at my journal from this year, and my most recent entry was this poem, which I thought I would share because 1) I haven’t posted in more than a month and 2) as I turned thirteen last week, I realized how much a person can change in one week, or even … More Next Week
Lately, I’ve been spending a lot of time on this app called Paper. It’s an ironic name; there’s no paper involved, only a screen. But it’s a pretty realistic one that works just the way real paper does, just will an infinitely handy undo button. Anyway, I have found myself drawing on it a lot. … More The Perfect Plan
Ok, I’m sorry. It’s been like, a whole month since I’ve done anything with this blog. But life gets in the way, even when you’re a twelve-year-old who mainly just has to focus on homework and school and what to wear tomorrow. So, my last post was on March 2nd, and today’s April 2nd, which … More There is A LOT to Talk About.
Woah. It feels like just yesterday, I was sobbing because I thought I would never be a normal kid again. I know everyone says that “it feels like just yesterday” thing about every big achievement and everything, but it really does. And maybe it’s because I really haven’t changed that drastically. I mean I’ve grown … More Six Months!
Sorry about not sharing anything for more than two weeks! Last week I was sick with the stomach flu. That was kind of scary, because I thought it might be a flare and that my diet suddenly wasn’t working. But turns out it was going around and for once, I wasn’t the only one around … More Why I Haven’t Posted In A While
Yesterday, my best Crohnie friend (who happens to be my dance teacher), Marnina Cowan, gave me two awesome new shirts; one for this summer, one that raises IBD awareness (though I can obviously wear them all the time!). They’re also really cute, and big enough for me to grow into them, so that’s a plus… … More New IBD Shirts!
So, a lot of the time I get really annoyed because of how often I’m craving sugar and then having nothing to replace it. Last night, I went to my friend’s house where we made a totally Johanna-friendly meal, with basil pesto salmon, lentils, artichokes in a delicious garlic butter sauce, and carrots baked with … More Caramel Experiments?