Art for Sale

I’m so excited to be writing this right now!

So… Almost a year ago I said I wanted to start selling my art. That never really took off, because I realized that getting the paper, being able to ship things out, and executing the entire thing was going to to take a lot of time and effort that, to be honest, I didn’t really feel like putting in.

But that’s okay, because luckily, a lot of my friends really like stickers.

Ok, let me back up a second.

About a month and a half ago, a friend of mine bought a bunch of really cool stickers from a website called Redbubble. I checked it out, and saw that they sell tons of stickers with cool pictures, sayings, and designs on them. I started to wonder, just because I love to draw, if people could submit their own stuff to the website for other people to see and/or buy.

Well, I read some more and saw that that’s really the whole point of the website! Redbubble is a platform for any artist to upload their work digitally and then sell it to others online, not just on a sticker, but on a mug, phone case, tank top, or simply on a board to hang up on one’s wall.

So, I realized that this is the perfect place for me. Redbubble gives me the ability to sell my art to anyone, anywhere, on anything.

And when I earn the money, I can send 100 percent of it straight to NIMBAL, where the donation helps fund research and studies. These will help prove that Crohn’s disease is in fact effected by diet. And, hopefully, it will make diet a treatment just as well-known as any other medicine. It could help patients around the US and the world who simply aren’t aware or do not believe that diet really is a feasible option for the treatment of Crohn’s or Colitis (IBD).

That is, all of this could happen if people buy the art that I’m putting up.

So, why not start the IBD diet revolution?

But my art here :).

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8 thoughts on “Art for Sale

  1. IBD is a disease that affects everyone differently and diet can be a good intervention for some but certainly not for all. “Just realizing they need to eat differently” implies that these patients should be or should have been doing something to not get sick. This is a very narrow view of the physiology and disease process and cannot be applied as a generalized solution to a complicated problem. It also implies that they haven’t been doing a good job and that if they had only eaten better their illness might have been avoided. Until this is proven with absolute certainty, It’s important for people, especially children, not to feel ashamed or embarrassed of their illness or to be felt as though they brought it on themselves. The doctors running the NIMBAL studies are quick to admit that diet treatment is not appropriate or safe for many patients. It is wonderful that you are an ambassador for patients but please understand that it’s important to acknowledge that it’s the disease we need to condemn, not the treatments people are using to achieve wellness.

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    1. I’m not trying to make any patient feel ashamed of their disease or how they may have developed it. I understand that IBD is a complicated issue, and that the causes and triggers of the disease are still poorly understood. But SCD, the diet that I’m trying to raise awareness for, though it has not been “proven with absolute certainty” to work (as larger studies proving the success of the diet are still ongoing), should be the first line of treatment for every IBD patient. No treatment with has been proven with absolute certainty to be the correct method for any patient. And I’m not saying that a diet is necessarily right for every patient. Many find it difficult in this day and age to eat the way that the diet allows. However, a treatment with a higher success rate than most medicines (80%) and no side effects at all should be the first one that patients try upon diagnosis. This is what I am advocating for. If the diet doesn’t work for a certain patient after trying it for several months, then they should absolutely try something else. But why start a patient off with a certain medicine that has side effects, may only last for under a year, and have a lower success rate overtime than the diet (initially 83.2% for Remicade, going down to 62% after one year and eventually only 44% after two years)? This is why I am raising awareness for this diet. I am not saying that this should be the only line of treatment for any given patient. I am saying that it should be the first, because someone with IBD should not start their journey paying giant bills for medicine that may never work before even considering the unconventional SCD instead. Thank you for responding. I hope I’ve made my mission more clear and that you will support my cause in the future.

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      1. It absolutely should not be the first line treatment for every patient. Dr.Suskind himself says this very clearly on the NIMBAL site. Please make sure you are informed. There are patients who absolutely are too symptomatic to use diet as a first line intervention and who would be putting themselves at extreme risk were they to do so.

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  2. Hi – Johanna’s mom here. I guess what Johanna was trying to say is that many (or even most) of those for whom SCD *would* be a safe and successful treatment are never offered that option but are instead ONLY offered medication. Even Johanna’s GI doc, who introduced us to SCD, was initially sceptical, not only whether this could work, but also that she could pull it off. And it’s certainly not easy for a teenager living in the developed world today- when you read her blog you’ll see why.
    But we also have now talked to so many parents who told us they wished they had known about the diet earlier. Some of the kids got better after having failed biologics. We know of a family that (successfully) started SCD when their child was scheduled to have his colon taken out, and we’ve talked to many others who told us their doctors were not supportive of diet even when it clearly worked. So it’s not about a one-for-all approach at all. Just about awareness that there are alternatives for many who might profit from knowing about them and would want to give them a try. And of course to fund more research since it’s still only poorly understood how the diet works.
    There are many ongoing studies now, including at Stanford, CHOP and in Israel. Dietary treatment might not be appropriate for every patient, but it should be common practice for doctors to inform those patients who might profit that there is such a potential option. As one parent told me once, “it’s great to carry an Epi-Pen, but you also have to avoid peanuts.” Now research is needed to let us know exactly what those “peanuts” are for each patient, but until then, SCD works for a majority of those who try. (And we also know, by the way, that most of even Dr Suskind’s patients do NOT want to try diet. And that’s fine. But those who do want to try it should get the same support from their doctors.) There are also kids for whom the diet the way we understand it doesn’t work, or for whom it only works together with medication.

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    1. Absolutely all patients should be given all options that are available and safe for them. But saying all patients should use this as first line treatment is not a true statement. The way you qualified it here is important, that all patients for whom it is an appropriate and safe option should be given it as a choice for first line treatment. But it needs to be qualified rather than stated as fact. Thank you.

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