Welcome! If you’re new here, my name is Johanna Lane. I have Crohn’s disease, a disease that, in my case, gave me terrible stomach aches and made me stop growing for three years. But as treatment, I’ve started the Specific Carbohydrate Diet, or SCD, and I’m now growing a lot and I feel fine. The diet I’m on has been proven to help 80% of patients feel better again, a lot better than most regular medicines for Crohn’s can do.
But I’m a lucky case. This diet is really new, and most people either don’t know about it or don’t believe that it works. So, in order to help more kids like me feel happy and healthy again, I want to raise money for NIMBAL, an organization run by Children’s Hospital of Seattle that raises awareness for the SCD and shows people that it really does work.
Many patients start right after they’ve been diagnosed with Crohn’s with a harmful medicine that costs mountains of money, may have a lower success rate than SCD, and can cause loads of side effects (including psoriasis, worsened symptoms, joint pain, or a heightened risk of cancer) just because they didn’t know about the diet or their doctors didn’t believe in it. So, my mission is to raise enough money to make SCD a treatment, just like any other medicine. This way, a patient might be able to achieve remission right away without side effects (like I did), or if the diet isn’t for them (though for 80% of patients it is) then they can move onto a different treatment. I want to get the word about diet out.
The diet removes all sugar, grains, and lactose from my meals, so it’s hard to eat like everybody else. But a lot of the time I find that drawing the food that I miss a lot helps me feel better if I’m sad about not being able to eat it. I also love to draw stuff I can eat, though, because it helps me recognize how much I still have.
So, what I want to do is sell my drawings, and then give 100% of the proceeds to NIMBAL and help people with Crohn’s disease learn about the SCD diet.
I’d definitely appreciate it if you could help me out with that!
You can look at and buy my art right HERE.
(It’s not just art depicting food up there, ya also some other pieces that do not have to do with SCD but are still raising money to research it.)
If you have any questions, or you just want to talk, I’d love to hear from you at firstname.lastname@example.org.
Here’s some of my stuff: