I should really post more often. But hey, the only way to start doing that is by posting something, so here I am! It’s been more than two months since I basically filled you in on my entire year doing SCD. Sorry about that. Ok I’m just wasting time. I’ll actually start now. Let’s go… … More Exhausted
I don’t know why this took me so long… Or why I really haven’t posted at all on a weekly basis since somewhere around March. But Camp Oasis really was a highlight of this past year as a Crohn’s patient! It was amazing to see how many people were living … More Sorry I’m Late!
This is a guest post by a special supporter because Johanna is in West Virginia at Camp Oasis, a summer camp for kids with Crohn’s and colitis. At intake, Johanna got a huge high-five from the medical team when they realized her medication list was… empty. … More “Really? No Meds? – High Five, Girl!”
Ok, I’m sorry. It’s been like, a whole month since I’ve done anything with this blog. But life gets in the way, even when you’re a twelve-year-old who mainly just has to focus on homework and school and what to wear tomorrow. So, my last post was on March 2nd, and today’s April 2nd, which … More There is A LOT to Talk About.
Woah. It feels like just yesterday, I was sobbing because I thought I would never be a normal kid again. I know everyone says that “it feels like just yesterday” thing about every big achievement and everything, but it really does. And maybe it’s because I really haven’t changed that drastically. I mean I’ve grown … More Six Months!
Yesterday, my best Crohnie friend (who happens to be my dance teacher), Marnina Cowan, gave me two awesome new shirts; one for this summer, one that raises IBD awareness (though I can obviously wear them all the time!). They’re also really cute, and big enough for me to grow into them, so that’s a plus… … More New IBD Shirts!
So, a lot of the time I get really annoyed because of how often I’m craving sugar and then having nothing to replace it. Last night, I went to my friend’s house where we made a totally Johanna-friendly meal, with basil pesto salmon, lentils, artichokes in a delicious garlic butter sauce, and carrots baked with … More Caramel Experiments?
Congratulations to Cindy and Caleb for finally making their website public. Go ahead, check it out. I’ll tell you why: Caleb, a 14 year old boy with Crohn’s disease, is on the SCD as well. He has been on the diet for a year, and a couple of months ago he realized that he wanted to … More Caleb’s Cooking Company Is Now Live!
And how lucky I am to be a part of it! Many studies have been coming out recently, proving my diet to be a diet that works and that puts IBD patients into remission quite quickly. I would probably trade a lot of things for not having Crohn’s sometimes, but I have to say that I’m … More New Studies — The SCD Revolution Begins!
So, as I’ve said before, I love my camp. I love going there each summer, and enjoy each moment I spend there. But that includes the food. So this year, I’ve been emailing with a lot of staff in order to figure out a way to incorporate the diet into my camp experience. Although it … More About Camp